Technology in the Inclusive Environment
July 25
In the News
Alone in the World: http://www.aft.org/pubs-reports/american_educator/issues/summer06/autism.htm
"For autistic children, relating to others is life's greatest challenge."
Another Alternative For Special Ed Students: http://www.districtadministration.com/page.cfm?p=1150
A new flexibility option under No Child Left Behind gives states the chance
to allow 2 percent of students with academic disabilities to take tests that
are specifically geared toward their abilities.
Reading, writing, and video games:
http://www.daytondailynews.com/blogs/content/shared-gen/blogs/dayton/education/entries/2006/07/24/reading_writing.html
"The Dayton school district’s newest high school wants kids who are
willing to spend hours staring at a video screen, working on their skills, until
they master the challenges presented to them."
States Struggle With SES (Supplemental Educational Services)
Monitoring; Some Districts Pick Up the Slack: http://www.thompson.com/libraries/titleionline/news_desk/tio050627.html
The No Child Left Behind Act gives low-income students access to something most
never had: extra tutoring. But, experts say, many states have approached oversight
of the multibillion-dollar industry in an uncertain fashion, sparking fears
that toothless systems may allow poorly performing programs to continue, or
worse, enable fly-by-night vendors to pilfer public money.
Do your homework and turn the TV off!: http://www.post-gazette.com/pg/06206/708316-298.stm
"Distractions impair aability to learn, research shows."
Learning Disabilities
Misunderstood Minds: http://www.pbs.org/wgbh/misunderstoodminds/
Down Syndrome
These national organizations will send free, accurate information about Down
Syndrome. They have yearly conferences,
newsletters, and lists of local parent groups who you may wish to contact for
local resources and information. In the USA contact: The National Down Syndrome
Society 1-800-221-4602
The National Down Syndrome Congress: 1-800-232-6372
Adolescents With Down Syndrome : Toward a More Fulfilling Life
by Siegfried M. Pueschel (Editor), Maria Sustrova (Editor)
Paperback - 416 pages (August 1997)
Paul H Brookes Pub Co; ISBN: 1557662819
Advances in Down Syndrome
ed. by Valentine Dmitriev and Patricia Oelwein, Special Child Publications
ISBN 0-87562-092-2
The Alliance for Technology Access: http://www.ataccess.org
Andrea Friedman article Life Goes On actress with DS - Amanda: http://www.abilitymagazine.com/ability/text/backisu/Friedman.htm
The Arc's Home Page: http://www.thearc.org/
thearc@metronet.com
Australian breastfeeding tips page: http://www.vicnet.net.au/vicnet/nmaa/downsynd.htm
Axis Consultation & Training
Norman Kunc & Emma Van der Klift
http://www.normemma.com
Axis Consultation & Training Ltd.
340 Machleary Street
Nanaimo, British Columbia, Canada V9R 2G9
Telephone: (250) 754-9939 Fax: (250) 754-9930
Email: axis@island.net
Babies With Down Syndrome, A New Parents' Guide, ed.
by Karen Stray-Gundersen, Woodbine House, ISBN 0-933149-64-6
Beautiful Faces Calendars and Cards: http://www.bandofangels.com/
Biomedical Concerns in Persons With Down Syndrome
by S.M. Pueschel and J.K. Pueschel, Paul Brookes Publishing Co.
ISBN 1-55766-089-1
Breastfeeding Advocacy WWW pages:
http://www.clark.net/pub/activist/bfpage/bfpage.html
http://www.breastfeeding.asn.au/bfinfo/down.html
http://www.lalecheleague.org/FAQ/down.html
Children with Diabetes WWW page (DS): http://www.childrenwithdiabetes.com/d_03_193.htm
Children with Diabetes Information for Classmates: http://www.childrenwithdiabetes.com/d_0q_421.htm
The Children's Heart Society: http://www.childrensheart.org
Choosing Naia: A Family's Journey
Mitchell Zuckoff ISBN: 0807028169 Beacon Press
Classroom Language Skills for Children With Down Syndrome -
A Guide for Parents and Teachers (Topics in Down Syndrome)
by Libby Kumin; Woodbine House; ISBN: 1890627119
1-800-843-7323 http://woodbinehouse.com/down-syndrome.Down_Syndrome.0.htm
Closing the Gap (Supportive Technologies): http://www.closingthegap.com
Communicate With Your Child
Bookmasters Publishing 1-800-247-6553
http://groups.yahoo.com/group/communicating
Communicating Partners - Dr James MacDonald
http://jamesdmacdonald.org
Count Us In by Jason Kingsley and Mitchell Levitz. 1994.
ISBN 0-15-622660-x Harcourt Brace, 465 S. Lincoln Drive,
Troy, MO 63379 Phone 1-800-543-1918
Dan's Page - Teenager with Down Syndrome: http://members.aol.com/karenl2888/dan.html
KarenL2888@aol.com (Inclusion Chat host)
Department of Human Genetics; Virginia Commonwealth University
P.O. Box 980033; Richmond, VA 23298-0033
(804)828-9632; Fax (804) 828-3760
The Development of Language and Reading Skills in Children With
Down Syndrome: http://www.downsnet.org
by Susan Buckley. Portsmouth Polytechnic, 1986.
She has had success in teaching children with DS as young as 2 to read.
Diagnosis of Autism in Children With Down Syndrome: http://www.altonweb.com/cs/downsyndrome/autism.html
Disability Solutions - A Publication for Families & Others
Interested in Down Syndrome & Developmental Disabilities:
http://www.disabilitysolutions.org
Downs Heart Group: http://www.downs-heart.downsnet.org/index.htm
Down Syndrome: A Promising Future, Together
Comprehensive medical, developmental, educational, and vocational issues,current
trends and most recent update of the Health Group Guidelines.
Concludes with personal stories of young adults with DS
isbn#0-471-29686-4
isbn#0-471-29687-2 paperback
(John Wiley & Sons, Inc.)
ds-autism listserv: http://www.onelist.com/subscribe/ds-autism
Down Syndrome & Hirschsprung Disease Section: http://www.altonweb.com/cs/downsyndrome/hirschin.html
Down Syndrome Clinic Frequently Requested Information: http://www.chw.org/display/PPF/DocID/2554/router.asp
The Down Syndrome Educational Trust: http://www.downsnet.org/downsed/
Down Syndrome Home Page: http://www.nas.com/downsyn/
Articles by professionals; essays by family members Information on the Down-Syn
internet list serv and archives
http://www.nas.com/downsyn/dslistserv.html
http://www.nas.com/downsyn/start.html
"Down Syndrome: The First 18 Months" video: www.blueberryshoes.com/ds18
Down Syndrome Health Issues: http://www.ds-health.com
dr.len@ds-health.com
Also includes listing of Down Syndrome Clinics in the US; DS topic WWW sites
Down Syndrome Information for the UK (Great Britain): http://www.43green.freeserve.co.uk/uk_downs_syndrome/ukdsinfo.html
Down Syndrome: Living and Learning in the Community;
edited by Lynn Nadel and Donna Rosenthal; NDSS; Proceedings of the Fifth International
DS Conference held in Orlando, FL in 1993; C 1995 Wiley-Lisss Inc
ISBN 0-471-02201 pbk; 0471-02192-x hardback
Down Syndrome Quarterly - newsletter:
http://www.denison.edu/dsq/
Editor: Samuel J Thios, PhD, thios@denison.edu
614-587-6338 Fax 614-587-6417
Denison University; Granville, OH 43023
Newsletter with articles of interest to the Down Syndrome Medical Special Interest
group on diverse topics
Subscriptions $24/year (4 issues)
The Down Syndrome Nutrition Handbook: A Guide to Promoting Healthy Lifestyles
by Joan E. Guthrie Medlen Woodbine House; ISBN: 1890627232
Down Syndrome Research Foundation
http://www.dsrf.org
dsrf@sfu.ca
Down's Syndrome Vision Research Group
http://www.cardiff.ac.uk/optom/DownsSyndromeGroup/Parents.html
http://www.cf.ac.uk/optom/DownsSyndromeGroup/Links.html
Dusty's Page - Young Woman with Down Syndrome: http://www.microweb.com/ddutton/dustyd.html
Early Communication Skills for Children with Down Syndrome
by Libby Kumin ISBN 1-890627-27-5 Woodbine House 1-800-843-7323
The new edition of _Communication Skills in Children with Down Syndrome_ focuses
on speech and language development from birth through the stage of making 3-word
phases, problem areas and treatments.
The Educational Resources Computer Software catalog: 1-800-624-2926
The Effectiveness of Early Intervention: http://www.altonweb.com/cs/downsyndrome/eieffective.html
Enhancing Feeding Skills: http://www.nads.org/speech.html
Enhancing Language Development: http://www.nads.org/speech.html
Essays and Poems: http://www.nas.com/downsyn/donations.html
Mother's Day, A Father's Letter to New Parents, An Open Letter From My Heart
To Educators
Family Village Project: http://www.familyvillage.wisc.edu:8000/lib_down.htm
Linda Rowley, Family Village Project Coordinator
rowley@waisman.wisc.edu
Diverse diagnoses and related conditions; click on LIBRARY at: http://www.familyvillage.wisc.edu/
Text Only (quick to read, no graphics): http://www.familyvillage.wisc.edu/tindex.htm
French Accueillir les bebe trisomiques: http://www.nas.com/downsyn/frwds.html
From Isolation to Conversation: http://www.jamesdmacdonald.org/Articles/FDown/FromIsolationtoConversati.html
Gross Motor Skills In Children With Down Syndrome by Patricia C. Winders, Physical Therapist. Woodbine House 1-800 843-7323
Growth Charts for Children with Down Syndrome: http://www.growthcharts.com/
Health Care Guidelines for Individuals with Down Syndrome (DS Preventive Medical Check list) is available at Down Syndrome Quarterly: http://www.denison.edu/collaborations/dsq/health99.html
_Hope for the Families: New Directions for Parents_
by Robert Perske; illustrated by Martha Perske
ISBN 0-687-17380 Abingdon Press
How to Treat People with Down Syndrome - Advice for Family Physicians
(English and Spanish)
http://www.nas.com/downsyn/contrib1.html
Inclusion.com: http://www.inclusion.com
The Independent Panel for Special Education Advice (Great Britain): http://www.ipsea.org.uk/index.htm
_Infant Massage : A Handbook for Loving Parents_ by Vimala Schneider
McClure; Bantam Doubleday Dell; 1989
ISBN: 0553346326
With more than 90,000 copies of the first edition in print, Infant Massage has
been completely revised and updated to reflect fascinating new research about
the effects of touch on parent-child bonding, infant stress, sensory development,
and the care of special-needs babies.
It Takes Two to Talk: A Parent's Guide to Helping Children Communicate
A. Manolson. The Hanen Program. 1992. The Hanen Centre, 252 Bloor Street West,
Room 390, Toronto, Ontario, Canada M5S 1V5. ISBN 0-921145-02-0. Ph 416-921-1073.
Japanese Characters: http://jdsn.ac.affrc.go.jp/welbaby.html
The Language of Toys: Teaching Communication Skills to Special-Needs
Children. A Guide for Parents and Teachers
Sue Schwartz and Joen E. Heller Miller. 1988. Woodbine House,
6510 Bells Mill Road, Bethesda, Maryland 20817.
Toll Free USA 1-800-843-7323.
Learning to Talk: http://www.altonweb.com/cs/downsyndrome/comtalk.html
List of DS clinics: http://www.ds-health.com/clinics.htm
Love and Learning: http://www.loveandlearning.com/home.shtml
Lovlearn@concentric.net
Joe and Susan Kotlinski
P.O. Box 4088, Dearborn, MI 48126-4088
(313-581-8436)
Parents of a child with Down Syndrome have developed a teaching technique which
enabled their daughter to read over 1000 words by age 5. This method utilizes
videos, audio tapes, and books to help develop language, reading, and comprehension
skills.
Mayer-Johnson - The Building Blocks for Learning and Human Expression
www.mayerjohnson.com
Mayer-Johnson Co
1-619-550-0084
Medical & Surgical Care for Children With Down Syndrome,
A Guide for Parents
ed. by D.C. Van Dyke, and P. Mattheis
Woodbine House, ISBN 0-933149-54-9
Medical Care in Down Syndrome: A Preventative Medicine Approach
by P.T. Rogers and Mary Coleman, Marcel Dekker, Inc.
ISBN 0-8247-8648-X
Mommy! I Have to go Potty; A Parent's Guide to Toilet Training
by Jan Faull, M.ED.
ISBN 0-9650477-0-9
Raefield-Roberts Pubs
More than Shared Classrooms, Educating Kids With and Without
Disabilities Together Successfully
by Michael L. Remus and Bev Adcock.
My Twinn Doll - The Doll Just Like Me: http://www.mytwinn.com
3231 South Platee River Drive
Englewood, CO 80110
Phone 1-800-4-MY-TWINN (1-800-469-8946)
FAX 1-303-789-4399
NADS (USA): http://www.nads.org
Fax: 630-325-8842
The National Down Syndrome Society: http://www.ndss.org
info@ndss.org
USA telephone 1-800-221-4602
212-460-9330
National DS Congress: www.ndsccenter.org
NDSCcenter@aol.com
USA telephone 1-800-232-6372
404-633-1555
National Father's Network
http://www.fathersnetwork.org
Our-Kids - Support for Caregivers of Children with Disabilities
http://www.our-kids.org/
http://www.our-kids.org/oknoframe.html
our-kids@maelstrom.stjohns.edu
Our-Kids-Adults
http://www.our-kids.org/OKAdults/
Parent Advocacy Coalition for Educational Rights (PACER): http://www.pacer.org
webster@pacer.org
Parent Advocate News: http://www.pilot.infi.net/~marywilt/
marywilt@pilot.infi.net
Pat Oelwein's DS in a Nutshell: http://www.angelfire.com/wa/reimeroo
Peak Parent Center
6055 Lehman Drive
Colorado Springs CO 80918
719- 531-9400
Support and information for parents whose children with DS are integrated in
neighborhood and parks department programs for babies and toddlers, neighborhood
schools in regular classes; as teens and young adults participate in secondary
education programs; and as adults have interesting jobs and commute from their
own apartments or supported living arrangements.
A Promising Future Together: A Guide for New Parents of Children
with Down Syndrome.
Video: National DS Society
666 Broadway, 8th Floor
New York, NY 10012-2317
Fax: 212-979-2873
The Psychobiology of Down Syndrome
ed. by Lynn Nadel
MIT Press, ISBN 0-262-14043-8
Recommended Down Syndrome Sites on the Internet: http://www.ds-health.com/ds_sites.htm
Research Study: http://www.mosaicdownsyndrome.com/study.htm
" This page contains the entire MDS research study done by Dr. Colleen
Jackson-Cook, of the Department of Human Genetics, Virginia Commonwealth University,
printed in 1996. The study itself is ongoing and information is being collected
daily. This study would not have been possible without the contributions of
Allison Gregory, M.S. and Lauren Vanner."
Risk and Recurrence Risk of Down Syndrome
An Extra Chromosome for Freddie
Open Window, Issue 3
Preparing for Surgery
http://www.nas.com/downsyn/donations.html
SF Bay Area Down Syndrome page: http://ptolemy.eecs.berkeley.edu/~pino/DS/
The Sibling Support Project's Web site: http://www.chmc.org/departmt/sibsupp
General references and resources
Ann Miller amille@chmc.org
Includes information for Grandparents, Fathers, Extended Family:
http://www.chmc.org/departmt/sibsupp/adultbrothersandsisters.htm
Sign language class online (for parents): http://www.lifeprint.com/
Spanish Bienvenidos Bebes con Sindrome de Down: http://www.nas.com/downsyn/wbsp.html
Stimulating speech and encouraging communication via the use
of computers
Laura Meyers, PhD, 8505 Gulana,
#4103, Playa Del Ray, CA 90293
TASH: http://www.tash.org/
TASH email: info@tash.org
Advocates for inclusion for everyone
Teaching Reading to Children with Down Syndrome, A Guide for
Parents and Teachers
Patricia Logan Oelwein; ISBN Number 0-933149-55-7
Woodbine House, 1-800-843-7323 http://www.woodbinehouse.com/
Activities to promote reading from infancy through adulthood
Teaching the Child with Down Syndrome: A Guide for Parents and Professionals by M.J. Hanson, Pro-Ed, ISBN 0-89079-103-1
Tech Aides and Educational Supports: http://www.ashleysmom.com
Thoughts from the Middle of the Night: http://www.our-kids.org/Archives/TFtMotN.html
Understanding Down Syndrome; An Introduction For Parents
by Cliff Cunningham; Brookline Books, 1996; ISBN No. 1-57129-009-5
BROOKLINEBKS@delphi.com; 800-666-2665 American Edition
UK Down Syndrome Information Network: http://www.down-syndrome.info/library/dsii/01/01/DSii-01-01-EN-GB.htm
UK Special Education - CSIE pages: http://inclusion.uwe.ac.uk/csie/csiehome.htm
Unplugging Power Struggles : Resolving Emotional
Battles With Your Kids Ages 2 to 10
by Jan Faull M.Ed.
Paperback - 128 pages
Parenting Press; ISBN: 1884734421
Your Baby has Down Syndrome video
Down Syndrome Center; Children's Hospital of Pittsburgh
3705 Fifth Avenue; Pittsburgh, PA 15213
Phone: 412-692-7963; FAX: 412-692-7428
email: cannons@chplink.chp.edu
$15 per video plus $3.00 shipping /handling
3 or more: $7.00 ea plus $3.00 shipping/handling
http://www.nb.net/mall/d/MSNCT_order.html
Welcome to Holland (English, Spanish, Chinese): http://www.nas.com/downsyn/donations.html
Welcoming Babies with Down Syndrome: http://www.nas.com/downsyn/welcome.html
Welcoming Babies with Down Syndrome may be edited and printed to distribute
to hospital nurseries, medical professionals, the media, family and friends,
to benefit individuals with DS and their families where local parent groups
do not have information packets available.
What's Up with Down Syndrome: http://members.ttlc.net/~kehler/What'sUp.html
This site began in March 1998 and was created by Janet Luch.
It was last updated on
July 27, 2006
Email to studyplans@yahoo.com.